Welcome back fellow bloggers, readers and anyone who suffers from any unseen or invisible illnesses, lets bring you back into the story of the blurred month of August. In my last post I had just described my journey from the clinical decisions unit (CDU) to the short stay unit, to eventually getting to a CDu2 surgical ward after three days of fighting with doctors and nurses.
So lets take it back a little, so I can give you some more insight into what I endured over that week. It was 11pm when a ward person had come to collect me from (CDU) and transfer me into the Short Stay Ward which was still another part of emergency,once I was settled I sent mum home because it was late. I remember laying there for half an hour uneasy to sleep because I was running back and forth to the toilet whilst trying to wheel a drip with me and not dirty my cloths at the same time. Once I was finally able to stay in my bed for longer then five minutes, I remember calling the nurse for my night time meds because I take amitriptyline (Endep) for my nerve illness. (This medication is used to treat mental/mood problems such as depression. It may help improve mood and feelings of well-being, relieve anxiety and tension, help you sleep better, and increase your energy level. This medication belongs to a class of medications called tricyclic antidepressants. It works by affecting the balance of certain natural chemicals (neurotransmitters such as serotonin) in the brain. Or Nerve Pain. )
The nurse answered and said she would be right with me, when unfortunately her time was suddenly obtained by a woman next to me who seem to be suffering from a fainting spell or was unconscious, I wasn’t too sure what was going on I could only make out bits and pieces of the sounds coming from behind the curtain that came between me and this other patient. I felt sorry for her, I thought yes I am in extreme pain but I also felt sorry for this woman who had only now come back into consciousness and was told she wouldn’t be going home to see her family anymore only for her safety.
I was suddenly interrupted from this hospital daze when a doctor, the young woman gynecologist who was the first person to see me was standing at my door (hospital curtain) She looked at me and said “Frankly I’m surprised you’re still here” I was still in a shocking amount of pain and she could see it, so I kind of just dismissed her comment because it was late and I was sick of arguing. She did the same external test she had done on me two days prior and same results, she then opted for an internal examination, which as a patient you have to give consent, I was willing to do anything at this point to find out what was wrong with me. She then went away, I had finally just been given my night time medication when another woman appeared, a doctor, a different one. She was a general surgeon she had introduced herself I can’t really remember her name but apparently she remembered me. She said that she had read my hospital files and had found an extensive report that she had written about me back before my nerve problem was diagnosed. She had such a strong female presence about her, she did the same as every other nurse and doctor that had been to see me, I started to sound like a broken record 10/10, yes, excruciating etc and then after a quick examination she said the best words that I have ever heard in my life.
She said “So all that psych stuff is bullshit right?”
It was the first time I had smiled throughout this whole journey and I said yes it is. She said right let me just make a few calls and have a conversation with my boss and I’ll get back to you. I said thank you as she left the room.
By now it was like 12:30/ 1 am, my hospital television was on in the background, I could feel my eyes start to close, I was in an out of a sleep daze, my eyes were closed but I could still hear the different beeps and weird noises that came from each hospital bed. Just before I hit full rem sleep at about 1:30 AM, I was woken up by the same young gynecologist woman who was wearing blue scrubs, a bald Indian man, clothed in black scrubs was standing with her. She introduced him as her boss, he then introduced himself as the head consultant gynecologist at the hospital. She stood behind him at the end of my bed as he listened to my story, I don’t know if she was having a crappy day or if she just didn’t like me but you could tell she didn’t really want to be there as she rolled her eyes as I continued to tell her boss the same story I had been telling. He then asked me if he could do the same external examination that everyone else had done I said yes. He saw how much pain I was in, constantly crying out when people touched me and even when they didn’t, when they pushed down and when they let go.
He then stood at the foot of my hospital bed and said here is the plan;
“We are going to admit you up into the CDu2 Ward (Surgical Ward), We will keep you up there and try and manage your pain by giving you different strong medications more regularly instead of like here in ED where you only get it when you ask for it, and we hope that by managing your pain it will still get better. You will then be attended to by the doctors on the morning rounds does that sound good?”
I nodded my head yes, I was happy to finally be admitted to a ward, so even though it was such a small win, it was a win after fighting with doctors for three days straight. They left. I then went back to sleep for what literally felt like 2 minutes before a wardy came to collect me. They wheeled me up to a room and I was sharing with an elderly woman who was sound asleep because it was now 2am in the morning. The ward nurses came to see me did my usual obs told me how to use the tv/ computer to order food and to watch tv. They left and I sent mum a message to let her know where about’s in this giant hospital I was now located and I finally went to sleep for that night.
This was such a long journey/ month which is why there will be 4 parts, in part 4 I will tell you everything that happened to get to my positive outcome. Please I encourage you all, if you have a story of invisible or unseen illnesses I would love to be able to tell it, share it on this blog. You know your body the best and sometimes you need to fight, believe in yourself, back yourself and together we can educate health professionals and the world.