Tag Archives: #medication

?! Appendicitis August Part 3 ?!

Welcome back fellow bloggers, readers and anyone who suffers from any unseen or invisible illnesses, lets bring you back into the story of the blurred month of August. In my last post I had just described my journey from the clinical decisions unit (CDU) to the short stay unit, to eventually getting to a CDu2 surgical ward after three days of fighting with doctors and nurses.

So lets take it back a little, so I can give you some  more insight into what I endured over that week. It was 11pm when a ward person had come to collect me from (CDU) and transfer me into the Short Stay Ward which was still another part of emergency,once I was settled I sent mum home because it was late. I remember laying there for half an hour uneasy to sleep because I was running back and forth to the toilet whilst trying to wheel a drip with me and not dirty my cloths at the same time. Once I was finally able to stay in my bed for longer then five minutes, I remember calling the nurse for my night time meds because I take amitriptyline (Endep) for my nerve illness. (This medication is used to treat mental/mood problems such as depression. It may help improve mood and feelings of well-being, relieve anxiety and tension, help you sleep better, and increase your energy level. This medication belongs to a class of medications called tricyclic antidepressants. It works by affecting the balance of certain natural chemicals (neurotransmitters such as serotonin) in the brain. Or Nerve Pain. )

The nurse answered and said she would be right with me, when unfortunately her time was suddenly obtained by a woman next to me who seem to be suffering from a fainting spell or was unconscious, I wasn’t too sure what was going on I could only make out bits and pieces of the sounds coming from behind the curtain that came between me and this other patient. I felt sorry for her, I thought yes I am in extreme pain but I also felt sorry for this woman who had only now come back into consciousness and was told she wouldn’t be going home to see her family anymore only for her safety.

I was suddenly interrupted from this hospital daze when a doctor, the young woman gynecologist who was the first person to see me was standing at my door (hospital curtain) She looked at me and said “Frankly I’m surprised you’re still here”  I was still in a shocking amount of pain and she could see it, so I kind of just dismissed her comment because it was late and I was sick of arguing. She did the same external test she had done on me two days prior and same results, she then opted for an internal examination, which as a patient you have to give consent, I was willing to do anything at this point to find out what was wrong with me. She then went away, I had finally just been given my night time medication when another woman appeared, a doctor, a different one. She was a general surgeon she had introduced herself I can’t really remember her name but apparently she remembered me. She said that she had read my hospital files and had found an extensive report that she had written about me back before my nerve problem was diagnosed. She had such a strong female presence about her, she did the same as every other nurse and doctor that had been to see me, I started to sound like a broken record 10/10, yes, excruciating etc and then after a quick examination she said the best words that I have ever heard in my life.

She said “So all that psych stuff is bullshit right?”

It was the first time I had smiled throughout this whole journey and I said yes it is. She said right let me just make a few calls and have a conversation with my boss and I’ll get back to you. I said thank you as she left the room.

By now it was like 12:30/ 1 am, my hospital television was on in the background, I could feel my eyes start to close, I was in an out of a sleep daze, my eyes were closed but I could still hear the different beeps and weird noises that came from each hospital bed. Just before I hit full rem sleep at about 1:30 AM, I was woken up by the same young gynecologist woman who was wearing blue scrubs, a bald Indian man, clothed in black scrubs was standing with her. She introduced him as her boss, he then introduced himself as the head consultant gynecologist at the hospital. She stood behind him at the end of my bed as he listened to my story, I don’t know if she was having a crappy day or if she just didn’t like me but you could tell she didn’t really want to be there as she rolled her eyes as I continued to tell her boss the same story I had been telling.  He then asked me if he could do the same external examination that everyone else had done I said yes. He saw how much pain I was in, constantly crying out when people touched me and even when they didn’t, when they pushed down and when they let go.

He then stood at the foot of my hospital bed and said here is the plan;

“We are going to admit you up into the CDu2 Ward (Surgical Ward), We will keep you up there and try and manage your pain by giving you different strong medications more regularly instead of like here in ED where you only get it when you ask for it, and we hope that by managing your pain it will still get better. You will then be attended to by the doctors on the morning rounds does that sound good?”

I nodded my head yes, I was happy to finally be admitted to a ward, so even though it was such a small win, it was a win after fighting with doctors for three days straight. They left. I then went back to sleep for what literally felt like 2 minutes before a wardy came to collect me. They wheeled me up to a room and I was sharing with an elderly woman who was sound asleep because it was now 2am in the morning. The ward nurses came to see me did my usual obs told me how to use the tv/ computer to order food and to watch tv. They left and I sent mum a message to let her know where about’s in this giant hospital I was now located and I finally went to sleep for that night.

 

This was such a long journey/ month which is why there will be 4 parts, in part 4 I will tell you everything that happened to get to my positive outcome. Please I encourage you all, if you have a story of invisible or unseen illnesses I would love to be able to tell it, share it on this blog. You know your body the best and sometimes you need to fight, believe in yourself, back yourself and together we can educate health professionals and the world.

Lauren x

 

 

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The Process of my invisible illness; To the final diagnosis: ACNE Part 1

Hello fellow bloggers and word press lovers it’s me Lauren and this is the story of the process I had to go through to finally get a diagnosis 7 years later.

In my previous post I discussed how I was diagnosed with Hypothyroidism, at the age of fourteen, just a quick re-cap:

“Hypothyroidism is a condition in which the body lacks sufficient thyroid hormone. Since the main purpose of thyroid hormone is to “run the body’s metabolism,” it is understandable that people with this condition will have symptoms associated with a slow metabolism. The estimates vary, but approximately 10 million Americans/Australians have this common medical condition. In fact, as many as 10% of women may have some degree of thyroid hormone deficiency.   Hypothyroidism is more common than you would believe, and millions of people are currently hypothyroid and don’t know it.”

I was put on a hormone replacement called Thyroxine, Sometimes called Oroxine. I was fourteen at the time and have been living on hormone replacements since and I seemed like a fine, happy healthy young girl again. I wasn’t as tired anymore, I was back at school, I was a healthy weight and suddenly all was right with the world or so I thought.

AND THEN I TURNED 16:

I had recently just transferred from South Oakleigh Secondary College, where I got bullied severely and moved to a school called Karingal Park soon to be McClleland College where my best friend Katrina was attending, which made the transfer a lot easier because I already knew her and her friends.

I always loved musical theatre from year 7, I made a promise that I would always be in school productions so I also made a lot of friends when I joined the Karingal Park school productions. However half way through production I ended up needing crutches because I had always grown too fast for my body that my knee caps would constantly pop in and out of place. It was always annoying because it would happen randomly and it just so happened to have happened literally straight after another cast member and he used to make claims that “I was copying him” like I had control over my body, and my invisible illness. This is one statement that constantly upsets me because people can’t physically see what’s going on in my body so they claim I have control over it like it was my intention to have my knee caps pop out of place and cause me severe pain every time I walked. Luckily the knee cap situation cleared up pretty quickly.

When it drew closer to the end of year Ten and the start of year Eleven I started noticing some more changes in my body, apparently I was really skinny, so skinny in fact that I almost looked anorexic, however I had no clue of the fact, as I believed I was a healthy weight for my age and I loved to eat.

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Lauren in Red (Left), Katrina best friend in Yellow (Right),

Although looking back at the images above you can tell that I wasn’t as healthy as I could have been. Then out of the blue I started experiencing severe stabbing pain within my fingers and toes, which then progressed to my hands and feet, at first I just thought these were growing pains as I was always growing too fast for my body. However within a week this invisible illness had progressed quite rapidly, the sharp stabbing pains that had been constantly occupying my hands and feet had suddenly progressed up through to my arms and to my legs and soon this sharp irritable unbearable pain had consumed my whole body. It got so bad to the point where I couldn’t walk properly anymore, I walked with my knees bent into one another, almost like I had polio disease. From not being able to walk properly my body was so ridiculously heavy, so mum made an executive decision to hire a wheel chair. When I wasn’t bed ridden or laying on the couch, I used that wheelchair to do everything and go everywhere, I even remember attending Katrina’s 17th birthday in my wheelchair.

It was the moment when my invisible illness started causing me more issues than not being able to walk, when I wasn’t able to bath myself, dress myself and even eat without needing the assistance of my mother or someone else, was when my family and I decided after many inconclusive doctor visits that it was time to go into hospital. I was staying at my grandparents house and they were close friends with a neurologist who worked at the Monash Hospital in Clayton, Victoria, So that was the hospital I was to attend.

 

In part two of this blog post, I shall discuss my admittance to hospital and the tests that I went through from what I can remember anyways and the next chapter to how I ended up with my official diagnosis of  Abdominal Cutaneous Nerve Entrapment Disease (ACNE)

Stay Tuned and Keep reading and if anyone has a story that they would like me to share on this blog please email to: thatsteelmedia@gmail.com

 

Lauren x