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?! Appendicitis August Part 3 ?!

Welcome back fellow bloggers, readers and anyone who suffers from any unseen or invisible illnesses, lets bring you back into the story of the blurred month of August. In my last post I had just described my journey from the clinical decisions unit (CDU) to the short stay unit, to eventually getting to a CDu2 surgical ward after three days of fighting with doctors and nurses.

So lets take it back a little, so I can give you some  more insight into what I endured over that week. It was 11pm when a ward person had come to collect me from (CDU) and transfer me into the Short Stay Ward which was still another part of emergency,once I was settled I sent mum home because it was late. I remember laying there for half an hour uneasy to sleep because I was running back and forth to the toilet whilst trying to wheel a drip with me and not dirty my cloths at the same time. Once I was finally able to stay in my bed for longer then five minutes, I remember calling the nurse for my night time meds because I take amitriptyline (Endep) for my nerve illness. (This medication is used to treat mental/mood problems such as depression. It may help improve mood and feelings of well-being, relieve anxiety and tension, help you sleep better, and increase your energy level. This medication belongs to a class of medications called tricyclic antidepressants. It works by affecting the balance of certain natural chemicals (neurotransmitters such as serotonin) in the brain. Or Nerve Pain. )

The nurse answered and said she would be right with me, when unfortunately her time was suddenly obtained by a woman next to me who seem to be suffering from a fainting spell or was unconscious, I wasn’t too sure what was going on I could only make out bits and pieces of the sounds coming from behind the curtain that came between me and this other patient. I felt sorry for her, I thought yes I am in extreme pain but I also felt sorry for this woman who had only now come back into consciousness and was told she wouldn’t be going home to see her family anymore only for her safety.

I was suddenly interrupted from this hospital daze when a doctor, the young woman gynecologist who was the first person to see me was standing at my door (hospital curtain) She looked at me and said “Frankly I’m surprised you’re still here”  I was still in a shocking amount of pain and she could see it, so I kind of just dismissed her comment because it was late and I was sick of arguing. She did the same external test she had done on me two days prior and same results, she then opted for an internal examination, which as a patient you have to give consent, I was willing to do anything at this point to find out what was wrong with me. She then went away, I had finally just been given my night time medication when another woman appeared, a doctor, a different one. She was a general surgeon she had introduced herself I can’t really remember her name but apparently she remembered me. She said that she had read my hospital files and had found an extensive report that she had written about me back before my nerve problem was diagnosed. She had such a strong female presence about her, she did the same as every other nurse and doctor that had been to see me, I started to sound like a broken record 10/10, yes, excruciating etc and then after a quick examination she said the best words that I have ever heard in my life.

She said “So all that psych stuff is bullshit right?”

It was the first time I had smiled throughout this whole journey and I said yes it is. She said right let me just make a few calls and have a conversation with my boss and I’ll get back to you. I said thank you as she left the room.

By now it was like 12:30/ 1 am, my hospital television was on in the background, I could feel my eyes start to close, I was in an out of a sleep daze, my eyes were closed but I could still hear the different beeps and weird noises that came from each hospital bed. Just before I hit full rem sleep at about 1:30 AM, I was woken up by the same young gynecologist woman who was wearing blue scrubs, a bald Indian man, clothed in black scrubs was standing with her. She introduced him as her boss, he then introduced himself as the head consultant gynecologist at the hospital. She stood behind him at the end of my bed as he listened to my story, I don’t know if she was having a crappy day or if she just didn’t like me but you could tell she didn’t really want to be there as she rolled her eyes as I continued to tell her boss the same story I had been telling.  He then asked me if he could do the same external examination that everyone else had done I said yes. He saw how much pain I was in, constantly crying out when people touched me and even when they didn’t, when they pushed down and when they let go.

He then stood at the foot of my hospital bed and said here is the plan;

“We are going to admit you up into the CDu2 Ward (Surgical Ward), We will keep you up there and try and manage your pain by giving you different strong medications more regularly instead of like here in ED where you only get it when you ask for it, and we hope that by managing your pain it will still get better. You will then be attended to by the doctors on the morning rounds does that sound good?”

I nodded my head yes, I was happy to finally be admitted to a ward, so even though it was such a small win, it was a win after fighting with doctors for three days straight. They left. I then went back to sleep for what literally felt like 2 minutes before a wardy came to collect me. They wheeled me up to a room and I was sharing with an elderly woman who was sound asleep because it was now 2am in the morning. The ward nurses came to see me did my usual obs told me how to use the tv/ computer to order food and to watch tv. They left and I sent mum a message to let her know where about’s in this giant hospital I was now located and I finally went to sleep for that night.

 

This was such a long journey/ month which is why there will be 4 parts, in part 4 I will tell you everything that happened to get to my positive outcome. Please I encourage you all, if you have a story of invisible or unseen illnesses I would love to be able to tell it, share it on this blog. You know your body the best and sometimes you need to fight, believe in yourself, back yourself and together we can educate health professionals and the world.

Lauren x

 

 

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?!Appendicitis August Part 2 ?!

Hello fellow bloggers and readers welcome back to what was a whirl wind month of August 2k16. In my previous post I started telling the story of my unbearable abdominal pain, which involved a lovely trip to the Gold Coast University Hospital, where I was poked and prodded, dosed up on pain medication that didn’t seem to be helping the pain at all. So I was transferred to CDU (Clinical Decisions Unit) the place where you go to wait to see if you will be transferred to a proper ward for further investigations or sent back into short stay just to manage pain. (Kind of like the cycle of emergency or not)

 

(The following events transpired over the 16th and 17th of August, It was very fast and much of it is a blur.)

On the 16th of August very very early in the morning I was seen by two young female gynecologists, they asked me similar questions to what the ED doctor had asked? Where is the pain? How bad is it out of 10? Does it feel worse if I push on it? To which majority of my answers were YES and Excruciating and 20/ 10. They didn’t stay for long and just told me that they didn’t believe that it was gynecological related and because of the pelvic ultrasounds I had done whilst under the ED team and there were no clear results they left.

I was told I wasn’t allowed to eat all day in case I had to go and have more tests, I ended up having to go for another X-Ray and when the results came back they said they couldn’t see anything except that I was heavily constipated and my bowel gas was blocking visuals of anything else. So the only treatment plan I had in place was to manage pain and to give me movical and an enema to help loosen my bowels.

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This day is all a bit of a blur with so many nurses and doctors walking in and out of my room and my pain still not dulling at all, I was exhausted because I hadn’t been able to sleep and to make it worse there was no TV in my room to help distract me, I was bored and I felt like I was going insane with pain.

I had already been fighting for my patient rights for one night and I remember one of  the nurses on change over , she had to do my regular obs,blood pressure, temp,heart rate and she asked me the same question “How is your pain level out of 10?”

and when I replied with 10 she said “no your not, you would be screaming and crying if you were”, just because I didn’t have any tears left in my eyes from crying the day before I was dehydrated. This comment didn’t sit well with me, because I thought how would she know? She is not experiencing my pain and everyone’s pain tolerance is different. I had been dealing with pain since I was 16 so I had to have some sort of coping mechanism to deal with the pain right? So I asked her as I burst into tears, so much so that I was no longer able to speak for myself and mum now had to step in and speak for me. She explained to the nurse that I was just fed up and incredibly frustrated because I have had to fight and face comments like that all my life. The nurse then became very sympathetic because she could see how upset I was and she had not wished to upset me. The nurse and mum then tried to explain to me it was the chart used to help the nurses to help me so what I thought was a 10 may have been an 8 so they could provide me with the proper dose of medication and that she did not mean it in a way that my pain was any less then I had been describing. I now understood she was just doing her job which I respected and felt sorry for her that I was being such a pain. I was now physically and emotionally exhausted so I tried to sleep.

I was in and out of sleep when suddenly I awoke with the horrible pain again, I sat up in my bed crying and clutching my stomach, it seemed like there was no one around now, mum had gone to the food court to get some dinner. I felt like I was in so much pain and the halls were empty when suddenly a doctor/ surgeon or someone pointed at me and said she may have a kidney stone as well so get her a test done. I waited and waited and nothing….

it was almost 7pm at night now when I was seen to by a gynecologist, he seemed above the level of the two girls I had seen earlier, he had a feel of my stomach and went through the same questions again. “How is your pain out of 10?” Does it feel worse if I push on it?” “Is it a sharp or dull pain?” “Where does it hurt the most?” I answered with all the same answers as before yes, it’s excruciating, the pain isn’t getting better. To which he then turned around to me and said ” Look I don’t think it is Gynecological related, all I can do is either discharge you from here because I do not see the need for further investigation or put you into short stay and let the morning doctors discharge you.”  This made me furious I had already been fighting for a few days, I yelled at him and said the surgeon before wanted to check my kidneys and no one did that, I am in agony, the pain meds haven’t been working, I haven’t eaten in three days, and my GP wrote me an emergency referral to come into  hospital because when I was at Robina they wanted me to get a laparoscopy done. To which this surgeon basically tuned around and told mum and I that because of the money, and the stupid public system they would not do the diagnostic surgery unless I was physically dying and because all my test results were clear they couldn’t do anything. I argued and said if bowel gas is in the way how do you know something isn’t wrong if you do not look?

He replied “I’m sorry, that’s just the way it is, I can help with the bowels but I can not promise that you will not be discharged tonight.”

I was sobbing now and hyperventilating, I couldn’t breath, I was so upset, I thought I’m not getting sent home just to come back again tomorrow to go through the same thing. Mum was furious she got on the phone to her private gynecologist told him the situation and he asked to speak to the public doctor and basically told them that they were idiots for not checking everything. The public doctor just said the same thing he said to us that there is only a certain amount of money allotted to the public system to perform operations. Now all he was saying was that he would transfer me back to short stay and under the care of the ED doctors again. I was overwhelmed by the generous amount of support from Facebook and people offering to pay for my private health if the public system refused to give me tests.

It was now  11 pm at night, I had been given some more movical and another enema and once that kicked in things started to flow like a fire hydrant, It would suck because I would be in bed, then I would feel this horrible flushed feeling on top of the pain and would have to rush around the corner to the toilet, this happened five or six times within the space of 10 minutes to the point where mum just said stay down there, I also now had another hydro lite/ saline drip to keep me from being dehydrated because I hadn’t eaten all day.

When I finally got back to my bed, I found that there was a wardy there waiting to transfer me to short stay in ED, I remember asking him if my bed was next to a toilet, luckily it was. Once I was transferred I was allowed to eat something, not that I really felt like eating because I had been so sick, I now had a TV in short stay and had finally been given my night time meds, I started to get settled in and it was really late so I sent mum home. There must have been a conversation between mums private gynecologist and someone up high at the public Gold Coast Hospital because within an hour of my getting transported to short stay the head consultant of the gynecology team was at my bed and had decided to speak with me. He did the same tests as everyone and then said they would be transferring me to CDu2 which is the surgical ward just to manage my pain on a more regular basis. It was 2am by the time I was transferred to the ward, so I fell asleep pretty much straight away.

In my next post i will continue this story and my journey and fight to not give up on my body and to always believe in myself.

Lauren x

 

? Appendicitis August ?! Part 1

Hello blogosphere,

Here we are again, you cruising over other peoples pages you may wish to look at and even read and here I am sitting in a Gloria Jeans coffee shop on a not so sunny day on the glorious Gold Coast preparing to write yet another invisible illness story. I have titled this post ? Appendicitis August ?  with the question marks and all because the month of August was such a whirlwind of a crazy month. This story starts only two months after being discharged from Robina Hospital with the unsure diagnosis of ‘Pelvic Inflammatory Disease’ (PID).  (Quick re cap: PID is inflammation of the female genital tract, accompanied by fever and lower abdominal pain.) I was prescribed two very strong antibiotics Flagyl and Doxycycline, and even though they gave me horrible side effects they had seemed to have cleared up the painful symptoms which seemed like the end of it.

Now lets fast forward to the month of August, my cousin Jacob had only just recently been in and had his appendix taken out. His family ended up opting for the private health care route as he was stuffed around for multiple hours at Robina hospital. I however am not as lucky to have the option of private health care as it is too expensive.

I was on a film set for a film myself and a few others had been shooting for a few months now to raise awareness about Invisible Illnesses and Mental Health such as depression etc. We had just eaten and I seemed fine and then out of the blue filming in the middle of beaudeseret and an abandoned train track I felt the most excruciating pain on the right side of my stomach that I had ever felt. It felt like someone had sucker punched me right in the gut, I crippled over in pain, at first I thought perhaps it was because I had eaten really unhealthy junk food (McDonald’s) and that my body wasn’t agreeing with it. Then I wondered perhaps whether it was my nerves playing up because the pain didn’t stay there the whole time. However I had some sort of feeling that this was not my typical nerve pain because I had only recently had my (RIF) T12 nerve ablation surgery done. (Radiofrequency ablation (or RFA) is a procedure used to reduce pain. An electrical current produced by a radio wave is used to heat up a small area of nerve tissue, thereby decreasing pain signals from that specific area. )

and even though my pain was in the same area on the right side it was a pain like any other, I had never ever felt something so excruciating in my life, and I was convinced that it was something different when the other crew members that I was with told me that “I looked pale” and that “I should sit down and drink water”. So that is exactly what I did, sat down and had a rest and then I soldered on and pushed through the rest of the day and to my surprise I thought the pain had gone away.

BOY WAS I WRONG!

I got home and the pain came back worse than before it was so crippling that I couldn’t even move, it was so bad that the F Word left my lips a couple of times, no home pain killer seemed to help, the only thing that made a minuscule difference was a heat pack. I remember sitting up in my mothers bed, crying in pain, hoping that it would go away when I was overcome with a sudden feeling of nausea and literally watched my abdomen grow before my eyes, it looked so swollen like a scene out of a movie to the point of where if it kept growing I thought it might have exploded. I got up, I was bent over holding the heat pack over my abdomen and hobbled towards the toilet, and within seconds of reaching the toilet bowl I threw up everything bar the kitchen sink. Normally I have quite a strong stomach and sometimes have to help force myself to get rid of this feeling (Not a pretty sight, because of the constipation, the uneasy feeling usually just sits in my stomach unless I help it along) but this time no help was necessary, I opened my mouth and out it all came. I wasn’t sure if the vomiting and nausea was related to the pain or not because the week before my mum and my sisters suffered from a horrific 24 hour gastro bug, which started with pain, vomiting and then diarrhea.

This is what I looked like when the pain and the vomiting first started to take place:

For those who know me know that I am pale but never ever had I been this pale before. This all happened on the Sunday, I ended up having to take pain killers and sleeping pills just to get through the night and in hope that the pain might go away when I woke in the morning.

 

IT DIDN’T!

Monday morning the 15th of August, I organised an appointment to see my GP at the time Dr. Jason Lo Tam from Reedy Creek Medical Centre, I explained to him my symptoms of excruciating pain on the right side, the underlying constant pain and the coming and going of the spasm like pain. He asked me to hop onto the bed so that he could feel my abdomen, he hardly pressed down on the stomach area when I was practically crying out in pain from the slightest bit of touch or pressure. He told me that I could get back up off the bed and then proceeded to tell me that he thinks I should go to the hospital to have the proper care and get the right diagnosis. He said that he had hoped he could try and work it out so that hospital care wouldn’t be necessary but he believed it was the best option. So here I was left in pain and now crying for two different reasons,

1. Because I was so sore,

2. Because now I had to wait and face medical professionals who might not believe me about the pain.

In the meantime I had made an appointment to see a gynecologist to do a diagnostic laparoscopy which had been ordered by the doctors at Robina after I had been discharged in June.

Dr. Jason Lo Tam had written me an urgent referral to Robina Hospital, I took the letter went home, packed my hospital essentials (bag of clothes, phone charger, spare underwear) and mum drove me to the closest hospital which was Robina Hospital. A volunteer from the hospital wheeled out a wheelchair, helped me get out of the car  and into the wheelchair and wheeled me to the front desk where I was met with a triage nurse. She asked me all the usual questions, checked my BP and then with a smile simply said “Please take a seat and someone will be with you shortly.”  So that’s what we did, I was in too much pain to sit upright so I laid down next to a mother and her poor little girl, and between listening to the busy rush of nurses and the cries of a man who was covered by a blanket, I looked at the clock and had been sitting there for almost 2 hours now, with no pain relief at all.

I watched a family practically push their way in front of other people to talk to the triage nurse, we were cramped, there was hardly any space left in the waiting room, no beds in emergency and this family of 7 seemed fine but needed to be checked over because they had been a part of the train derailment that had happened in varsity lakes. I was starting to feel claustrophobic and still in an immense amount of pain , still without pain killer, I got up and moved to seats at the back of the waiting room and laid back down. However my pain was interrupted and I was distracted for a moment when I saw a girl who looked worse than me, she was red in the face from crying, tears still streaming down her face, she was crippled over in a wheelchair, clutching pretty tightly to a green whistle which didn’t seem to have helped her pain at all.

Another hour passed by and my mother realised this girl was by herself, asked how long she had been sitting there and if she had any pain relief, the girl replied “Since lunch time, and no, I haven’t had any pain relief.” So mum walked over to the nurses behind the glass and voiced her concern, but Robina hospital was waiting room was even more full now if that was even possible. So this poor girl who had been waiting in so much pain said she was going to go to the other hospital (Gold Coast), mum asked her how she was going to get there  and she replied “public transport” and within that moment mum and I had a sort of telepathic conversation and thought we are not letting this poor girl in so much pain catch public transport to get to the specialist hospital. (Especially since the trains had stopped and now only buses were running.) So we offered to drive her , I realised that if I had to be at a hospital too I may as well be at the place where all the specialist teams were. So mum helped her lay down in the back seat, I sat in the front and we drove another half an hour to get to Gold Coast Hospital.

When we arrived there were no parks in emergency, so mum dropped both of us off at the door and we hobbled through the Gold Coast emergency waiting room together, It was almost completely empty compared to Robina Hospitals waiting room, we stumbled to the front desk the other girl in front said “Hi we have both come from Robina Hospital and we are both in excruciating pain. ” The triage process was a lot quicker now, we spoke to the nurses explained our symptoms, moved on to admin and got told to wait. We didn’t wait more than an hour in the waiting room and I am glad we didn’t because as we both laid opposite each other , a man came out from behind the door we could tell that he was not quite right and he just happened to sit next to us. He too was in pain, we listened to him cry out over and over again saying “Here it goes again, Here it goes again” as he squinted his face right up till it turned a shade of red. He started to ask mum all sorts of weird questions about us girls and she was fine in answering them, it wasn’t until he went to touch the girl that was with us that mum had to step in and say no. Luckily not long after that a male nurse came and did some obs on the girl that was with me and pretty much took her straight through to a bed in ED. Mum was now helping this girl with her bags and I was left laying by myself with this man and in pain, it wasn’t until he started asking me weird questions that I started to feel uncomfortable so I got up and hobbled over to a different lot of seats. I was just about to lay down when my mother returned with the male nurse following closely behind ready to do my obs.

He hooked up the blood pressure machine, the heart rate monitor and took my temperature and for some reason in that exact moment when he was there my body entered a whole other level of pain, I thought what I had been feeling before was bad, this was 110 times worse. I was now screaming in agony, tears running down my flushed faced and the spasm lasted for a good 30 minutes. The nurse tried to come me down and said he would be right back with panadine fort, he was gone less than 10 minutes when this lovely Indian girl doctor came out and called my legal name Lauren Reich, the nurse ran over gave me the panadine fort. It didn’t even touch the surface, the doctor than asked if I could walk I nodded my head and said “Yes, but very slowly.” I walked to a different waiting room area down a narrow hallway, to a place that said minor emergencies, mum was worried about this, about the doctors not taking it seriously but this lovely doctor smiled and replied “It is just a more quiet and quicker way to get through to emergency. I got changed into a one of those lovely hospital nightgowns and was poked and prodded, finally the doctor came to a conclusion and set we need to get your pain under control, so they inserted a Cannula (a thin tube inserted into a vein or body cavity to administer medication, drain off fluid, or insert a surgical instrument.) into my arm, which is generally a painful experience for me as I have very thin, very deep and very bad veins, I was also very dehydrated from throwing up, and gave me morphine through a drip to help with the pain and a saline/ hydro lite drip to help with the dehydration and then I waited. I waited for the bloods to come back, I waited for my urine to be tested, and I was almost up to my maximum dose of morphine through the IV. I saw that girl again once or twice throughout the night, I waved one time and the other time I was fairly sure I was pretty dazed from the morphine so just kind of smiled.

After the bloods and urine came back normal, and my BP started to drop again, I was sent off for a pelvic  ultrasound, to rule out any ovary cysts or ovarian torsion, I had an external and internal ultrasound which was a fairly uncomfortable ordeal in general because of the pain, but more because my radiologist was a male (which meant for the internal he had to have a nurse sit in with him.

External pelvic ultrasound – In situations where an internal pelvic ultrasound is not appropriate, the examination will be performed by placing the ultrasoundtransducer on top of the lower abdomen (stomach area). To ensure that the inside of the pelvis area is seen clearly on the screen, a full bladder is required.

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Transvaginal ultrasound is an examination of the female pelvis and urogenital tract (kidneys and bladder). It helps to see if there is any abnormality in your uterus (womb), cervix (the neck of the womb), endometrium (lining of the womb), fallopian tubes, ovaries, bladder and the pelvic cavity. It differs from an abdominal ultrasound as it looks at the pelvic organs from inside the vagina.

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The test is requested by your doctor if you have symptoms of pelvic pain, abnormal bleeding, to check for fibroids (muscle tumours of the uterus), polyps (areas of thickening of the lining of the uterus), ovarian cysts or tumours, infertility, or assessment of early pregnancy.

 

I was then sent for an X-ray, and when all these test came back inconclusive and with the only sign being massive constipation, they decided that I couldn’t stay in ED because I wasn’t emergency enough so they sent me to a ward called CDU or (Clinical Decisions Unit) this ward is where you go in order for doctors /  specialist to decide whether you are being sent up to an actual ward for further investigation or whether they send you to short stay just for pain relief. By the time I got to CDU it was 11pm at night and nobody was going to see me till the morning so I sent my mum home to bed.

In part 2 of this blog I will discuss the events that transpired over the next week. If you have a story that you would like to share please send to: thatsteelmedia@gmail.com

Lauren x

 

Not always a Happy Ending

Welcome back fellow readers, bloggers to the world of The Reality of Unseen Illnesses,

Sorry I haven’t written for a few months I have been confined to white tiled rooms we call hospitals, going through the same cycle and struggle of fighting with Medical Health Professionals.

Let’s back it up a bit my last story was the long journey I had taken to discover I had an Illness called Abdominal Cutaneous Nerve Entrapment Disorder (Here is a quick re cap on what that disease is :  (ACNES) is a condition that causes chronic pain of the abdominal wall. It occurs when terminal branches of the lower thoracicintercostal nerves (7-12) are ‘entrapped’ in abdominal muscles, causing a severe localized neuropathic pain that is usually experienced at ventral portions of the abdomen. It is frequently overlooked and unrecognized, although the incidence is estimated to be 1:2000 patients.[1] )

It was an amazing woman, a woman who looked beyond the norm and discovered that this was the main source of my chronic pain, a wonderful woman named Dr Heide Feberwee
Gold Coast Persistent Pain Management Service
Suite 3, Campus Alpha
2 Investigator Drive
ROBINA QLD 4226
Phone: (07) 5668 6825
Fax: (07) 5680 9539

and after having the  (RFA) ablation surgery I was pain free for quite awhile. However because I am only a young 22 year old my nerves grow back quite frequently and I usually have this operation done every 3-6 months.

So lets fast forward a few months to June 2016, I woke up the same as every morning and went through my usual routine and whist normal 22 year old’s morning’s usually consist of breakfast and coffee, this is what my morning consists of 100g of Thyroxine for my under active thyroid (Hypothyroidism) , 1 tablet of inner health plus (because of all the antibiotics I have to take), Movical and Iberogast (to help soften the bowel and help the digestive system whilst on many Opiate related medications. Which is not good. BTW. PLEASE ONLY TAKE MEDICATION AS PRESCRIBED BY GP OR HEALTH PROFESSIONALS.)

So in June 2016 , I woke up and realised I had a very bad pain on my right side and at first it felt like that odd sensation before you need to urinate, when this appeared the pain became so unbearable that I remained in a crouched over position clutching my right pelvic side. So I went through the painful steps of organising a GP appointment, the GP sending me off to get a Pelvic Ultra Sound both Internal and External, and for a girl a first time Internal Pelvic Ultra sound is a bit uncomfortable. Transvaginal ultrasound is an examination of the female pelvis and urogenital tract (kidneys and bladder). It helps to see if there is any abnormality in your uterus (womb), cervix (the neck of the womb), endometrium (lining of the womb), fallopian tubes, ovaries, bladder and the pelvic cavity. It differs from an abdominal ultrasound as it looks at the pelvic organs from inside the vagina.

I had that done, got the results and was sent away with the normal anti inflammatory pain killers, but this didn’t do anything so hoped into mums car and drove to my second home ‘Robina Public Hospital.’  went through the usual cycle of explaining the same thing over and over again being pumped with pain killers, getting told there is nothing really wrong, organise another  round of ultrasounds and because of the pain killers the hospital pumps me with I end up having to have a catheter (“uretic catheter”:) draining urine from the urinary bladder as in urinary catheterization, e.g., the intermittent catheters or Foley catheter or even when the urethra is damaged as in suprapubic catheterisation. 

After a major 48 hours I finally ended up with a questionable diagnosis of Pelvic Inflamatory disease: (inflammation of the female genital tract, accompanied by fever and lower abdominal pain.) I was put on two types of antibiotics Flagyl

(Flagyl (metronidazole) is an antibiotic. It fights bacteria in your body.

Flagyl is used to treat bacterial infections of the vagina, stomach, skin, joints, and respiratory tract. This medication will not treat a vaginal yeast infection.)

and …

Doxycycline is an antibiotic that is used in the treatment of a number of types of infections caused by bacteria and protozoa. 

and whilst these medications for the two weeks in combination with strong pain killers did help this pain for a period of time. However because the side effects were so bad I almost considered just living through the unbearable pain. Some of these side effects from both antibiotics included:

  • Diarrhea
  • Nausea
  • Migraines
  •  Bleeding
  • Loss of appetite
  • and the constant feeling of not feeling 100%

 

So i guess where I am going with this story is that not everyone is happy ending, and I still have to fight to prove my illnesses are real only to end up with a MAYBE or Questionable diagnosis. The only good thing to come out of my stories is that I end up making wonderful friends at the hospital going through similar things to me so they are very understanding, so when you are feeling stressed, sick and alone please remember that you are not alone and that there are people out there just like you!

Lauren x

If you have a story about your invisible illness that you would like to share with me and the world please email : thatsteelmedia@gmail.com