Tag Archives: #diagnosis

?! Appendicitis August Part 4 ?!

Oh hey again,

We have almost reached the conclusion of this crazy month August. In my last post I discussed my journey from short stay and my hard fight that led to the small win of finally being admitted onto a ward. The CDU2 (surgical ward).

I awoke on what must of been the fourth or fifth day of being in hospital roughly st 8am, when I was delivered breakfast, I ate it and then was given my morning meds and introduced to the morning staff. A nice nurse came and did the usual obs routine, blood pressure, temp, heart rate etc. Everything seemed normal, she walked out of the room for a moment and then came back in holding a tiny little medicine cup with two round white pills. It was my first lot of medication, the nurse watched to make sure I swallowed it and then walked away. It was a little past 10AM now and mum had arrived back to visit me in the ward. The next few hours felt like so long, like being in a drugged up hospital daze of nurses and doctors walking in and out and eating hospital provided meals and trying to watch tv and every time I was just about to fall asleep someone else would come in and wake me up with something different, just like clockwork.

The elderly lady next to me had been discharged, I couldn’t believe how old she was, she was 91 and still fighting fit walking to bathroom and doing everything for herself, she was only in there for a small fall and couldn’t wait to get back home to her cat. I had the room to myself for most of the day, I thought I might of had an alone room for one nigh, I was wrong, late afternoon another lady was wheeled up from the ED department she was a bigger woman, she had a drip connected to her and every five minutes she  would howl in pain, so there went any chance of me getting any sleep.

Mum had been with me all day so I sent her home because I didn’t believe anyone was going to see me on this day. However not long after mum left two doctors, a male and a female gynecologist came to see me, I had gotten up to go to the toilet when they arrived so I listened to what they had to say from the chair the hospital provides for guests and patients. Some major discussion between doctors and the different medical teams must have happened because when these doctors came to see me they told me the best news that I had been fighting for the whole time, they said;

“We are going to do a diagnostic laparoscopy procedure to rule out any gynecological problems and insert a Mirena IUD for contraception and to help with the pelvic abdominal pain.”  

(a surgical procedure in which a fibre-optic instrument is inserted through the abdominal wall to view the organs in the abdomen or permit small-scale surgery.)

(Mirena is a type of long-acting, reversible birth control called a hormonal intrauterine device (IUD) and is manufactured by Bayer Pharmaceuticals. An IUD is a small, flexible, T-shaped device that is implanted in the uterus.)

They explained to me that my surgery will be tomorrow, but they weren’t too sure when and if it would even go ahead or if it would be moved back because I was just on the emergency cancellation board and said thank you, hoped back into my bed and then they both left. The girl then came back in a few minutes later with surgery consent forms and then explained them to me and what this medical procedure would entail. She left. I then rang mum straight away and she said that was good news and then to message her tomorrow before I went into surgery. That night I had a drip inserted to keep my fluids up, as I was no longer allowed to eat anything. I was exhausted so I was given pain meds and went to sleep.

The next day, the day of the operation all happened super fast, I was woken up at 5am for all the nurses to do the usual Obs, Bp, heart rate, temp and give me morning meds. I could feel and hear my tummy grumbling from not eating, and no my body kept pushing out my drip so the male nurse on morning staff took it out. At 7am I was given a surgical gown to put on, I remember having this queezy feeling in my stomach and someone arrived at my bed, a surgical nurse and said “Someone will be up to get you in the next few minutes”.

I smiled and said “Ok” even though I was freaking out, I then rang mum straight away, She hadn’t even gotten up yet and I told her I was about to go down any minute now, I was a bit irrational because I kept asking what if I went down and she wasn’t there, she just replied and said I’ll be there when you wake up. I literally got off the phone to mum and within seconds a ward person had come to take me down to the operating theatres, I remember thinking gee that was fast, wasn’t even 10 minutes. I was parked on my bed in a waiting bay where the nurse who seemed to be organising all the theatres and what surgeons were in which one could see me. Opposite me was a little girl in a bed getting ready for her surgery. The nurse at the desk could tell that I was having a bit of anxiety and nerves, she said that’s completely normal, she offered me to go to the bathroom and then put a warm blanket on me. I laid there for about 20 minutes and then asked if I could use the bathroom again, she said yes, I went and very little came out, I told the nurse and she said that’s normal its nervous wee, because your anxious about the surgery. I literally hopped back into a bed when a surgical nurse came round and got me, she introduced herself and then wheeled me to the operating waiting prep room. There I met the junior anesthetist and the head anesthetist, I had told them how my drip had come out and how they  had to put a new one in even though my veins are really fine and deep. Just writing and talking about it now I can still feel the pain from that moment. He smiled and said I will try my best. Whilst they were trying to jab me in the right spot to be able to put me to sleep, a surgical nurse had come in to see if I understood the procedure that I was about to undergo to which I said yes. It was funny and lucky because it just so happened to be that the strong female surgeon who believed me happened to just come out from that operating theatre and walked into mine she said to me “While we are there, we will just take out your appendicitis as well, so that you or no one else can ever blame your appendicitis again.”

I just nodded okay and the anesthetist had finally gotten the drip in, I was prepped and ready, they then wheeled me into a giant metal silver operating room with a black operating chair table, it literally looked and made me feel like I was in Grey’s Anatomy or Private Practice, or House or something like that. They pushed my hospital bed right up next to the operating table and told me to scootch my touche until I was laying on the black operating table. Once I was stablised a bunch of doctors and nurses swarmed around me, the put a blood pressure and heart rate monitor on me. A cold thing that sticks to your leg, made sure I was wearing beautiful surgical stockings, a nurse was holding my hand because she could see that I was getting a bit worried. The anesthetist then said he was going to start giving me a little bit of stuff, it was funny because I knew I was going to have to have a catheter in and all I was worried about was that I didn’t have surgical undies on. They said it shouldn’t matter and then someone brought over a giant blue tube thing that either had oxygen in it or sleeping stuff because I was talking to a nurse and within seconds I was out.

The next thing I remember is having a nurse calling my name to wake up, and suddenly my eyes slowly opened and I was in recovery, my blood pressure was really high and the pain was still pretty bad so they kept pumping me with stuff until it went down, I was almost on the full amount of whatever drug they had given me, when I was down to a pain level of two they wheeled me back up to the ward where mum was waiting for me. I do not remember much of the rest of the day except for the fact that I had apparently been really chatty. Pretty much everyone in my family had come to see me, once I had talked myself out I kept going in and out of sleep.

(Before Surgery)                                   (after surgery)

I had a few more difficulties with people before discharge but that’s another story, I was discharged two days after my procedure on the Sunday which meant I had spent a whole week in hospital fighting with doctors. I was sent home with pain meds and was told I would get a follow up phone call a month later.

Fast Forward to the start of September an unknown number appears on my screen, I answer the phone it’s a surgical doctor doing the follow up phone call, he starts by asking how I am doing and then proceeds to explain the procedures that were done. I almost laughed when I heard his final sentence. His final words to me were;

“We were lucky we took out your appendix when we did, as it was really inflamed.”

I said thank you and hung up. I then punched the air like a fist bump as I was right the whole time, I knew something was wrong with my body and I was glad that no matter how exhausted I was I never gave up the fight. I was and still am very thankful to all the people who offered to put me through private medical, to the kick ass girl surgeon who believed what I said was real, to the private gynecologist who made a lot of phone calls to the public system. This is me saying thank you I couldn’t have done it without you.

and to all you people out there who suffer from an invisible or unseen illness please remember to always believe in yourself, fight for your rights, remember you are not alone and together we can educate the world.

Lauren x

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Not always a Happy Ending

Welcome back fellow readers, bloggers to the world of The Reality of Unseen Illnesses,

Sorry I haven’t written for a few months I have been confined to white tiled rooms we call hospitals, going through the same cycle and struggle of fighting with Medical Health Professionals.

Let’s back it up a bit my last story was the long journey I had taken to discover I had an Illness called Abdominal Cutaneous Nerve Entrapment Disorder (Here is a quick re cap on what that disease is :  (ACNES) is a condition that causes chronic pain of the abdominal wall. It occurs when terminal branches of the lower thoracicintercostal nerves (7-12) are ‘entrapped’ in abdominal muscles, causing a severe localized neuropathic pain that is usually experienced at ventral portions of the abdomen. It is frequently overlooked and unrecognized, although the incidence is estimated to be 1:2000 patients.[1] )

It was an amazing woman, a woman who looked beyond the norm and discovered that this was the main source of my chronic pain, a wonderful woman named Dr Heide Feberwee
Gold Coast Persistent Pain Management Service
Suite 3, Campus Alpha
2 Investigator Drive
ROBINA QLD 4226
Phone: (07) 5668 6825
Fax: (07) 5680 9539

and after having the  (RFA) ablation surgery I was pain free for quite awhile. However because I am only a young 22 year old my nerves grow back quite frequently and I usually have this operation done every 3-6 months.

So lets fast forward a few months to June 2016, I woke up the same as every morning and went through my usual routine and whist normal 22 year old’s morning’s usually consist of breakfast and coffee, this is what my morning consists of 100g of Thyroxine for my under active thyroid (Hypothyroidism) , 1 tablet of inner health plus (because of all the antibiotics I have to take), Movical and Iberogast (to help soften the bowel and help the digestive system whilst on many Opiate related medications. Which is not good. BTW. PLEASE ONLY TAKE MEDICATION AS PRESCRIBED BY GP OR HEALTH PROFESSIONALS.)

So in June 2016 , I woke up and realised I had a very bad pain on my right side and at first it felt like that odd sensation before you need to urinate, when this appeared the pain became so unbearable that I remained in a crouched over position clutching my right pelvic side. So I went through the painful steps of organising a GP appointment, the GP sending me off to get a Pelvic Ultra Sound both Internal and External, and for a girl a first time Internal Pelvic Ultra sound is a bit uncomfortable. Transvaginal ultrasound is an examination of the female pelvis and urogenital tract (kidneys and bladder). It helps to see if there is any abnormality in your uterus (womb), cervix (the neck of the womb), endometrium (lining of the womb), fallopian tubes, ovaries, bladder and the pelvic cavity. It differs from an abdominal ultrasound as it looks at the pelvic organs from inside the vagina.

I had that done, got the results and was sent away with the normal anti inflammatory pain killers, but this didn’t do anything so hoped into mums car and drove to my second home ‘Robina Public Hospital.’  went through the usual cycle of explaining the same thing over and over again being pumped with pain killers, getting told there is nothing really wrong, organise another  round of ultrasounds and because of the pain killers the hospital pumps me with I end up having to have a catheter (“uretic catheter”:) draining urine from the urinary bladder as in urinary catheterization, e.g., the intermittent catheters or Foley catheter or even when the urethra is damaged as in suprapubic catheterisation. 

After a major 48 hours I finally ended up with a questionable diagnosis of Pelvic Inflamatory disease: (inflammation of the female genital tract, accompanied by fever and lower abdominal pain.) I was put on two types of antibiotics Flagyl

(Flagyl (metronidazole) is an antibiotic. It fights bacteria in your body.

Flagyl is used to treat bacterial infections of the vagina, stomach, skin, joints, and respiratory tract. This medication will not treat a vaginal yeast infection.)

and …

Doxycycline is an antibiotic that is used in the treatment of a number of types of infections caused by bacteria and protozoa. 

and whilst these medications for the two weeks in combination with strong pain killers did help this pain for a period of time. However because the side effects were so bad I almost considered just living through the unbearable pain. Some of these side effects from both antibiotics included:

  • Diarrhea
  • Nausea
  • Migraines
  •  Bleeding
  • Loss of appetite
  • and the constant feeling of not feeling 100%

 

So i guess where I am going with this story is that not everyone is happy ending, and I still have to fight to prove my illnesses are real only to end up with a MAYBE or Questionable diagnosis. The only good thing to come out of my stories is that I end up making wonderful friends at the hospital going through similar things to me so they are very understanding, so when you are feeling stressed, sick and alone please remember that you are not alone and that there are people out there just like you!

Lauren x

If you have a story about your invisible illness that you would like to share with me and the world please email : thatsteelmedia@gmail.com