Hello fellow bloggers and readers welcome back to what was a whirl wind month of August 2k16. In my previous post I started telling the story of my unbearable abdominal pain, which involved a lovely trip to the Gold Coast University Hospital, where I was poked and prodded, dosed up on pain medication that didn’t seem to be helping the pain at all. So I was transferred to CDU (Clinical Decisions Unit) the place where you go to wait to see if you will be transferred to a proper ward for further investigations or sent back into short stay just to manage pain. (Kind of like the cycle of emergency or not)
(The following events transpired over the 16th and 17th of August, It was very fast and much of it is a blur.)
On the 16th of August very very early in the morning I was seen by two young female gynecologists, they asked me similar questions to what the ED doctor had asked? Where is the pain? How bad is it out of 10? Does it feel worse if I push on it? To which majority of my answers were YES and Excruciating and 20/ 10. They didn’t stay for long and just told me that they didn’t believe that it was gynecological related and because of the pelvic ultrasounds I had done whilst under the ED team and there were no clear results they left.
I was told I wasn’t allowed to eat all day in case I had to go and have more tests, I ended up having to go for another X-Ray and when the results came back they said they couldn’t see anything except that I was heavily constipated and my bowel gas was blocking visuals of anything else. So the only treatment plan I had in place was to manage pain and to give me movical and an enema to help loosen my bowels.
This day is all a bit of a blur with so many nurses and doctors walking in and out of my room and my pain still not dulling at all, I was exhausted because I hadn’t been able to sleep and to make it worse there was no TV in my room to help distract me, I was bored and I felt like I was going insane with pain.
I had already been fighting for my patient rights for one night and I remember one of the nurses on change over , she had to do my regular obs,blood pressure, temp,heart rate and she asked me the same question “How is your pain level out of 10?”
and when I replied with 10 she said “no your not, you would be screaming and crying if you were”, just because I didn’t have any tears left in my eyes from crying the day before I was dehydrated. This comment didn’t sit well with me, because I thought how would she know? She is not experiencing my pain and everyone’s pain tolerance is different. I had been dealing with pain since I was 16 so I had to have some sort of coping mechanism to deal with the pain right? So I asked her as I burst into tears, so much so that I was no longer able to speak for myself and mum now had to step in and speak for me. She explained to the nurse that I was just fed up and incredibly frustrated because I have had to fight and face comments like that all my life. The nurse then became very sympathetic because she could see how upset I was and she had not wished to upset me. The nurse and mum then tried to explain to me it was the chart used to help the nurses to help me so what I thought was a 10 may have been an 8 so they could provide me with the proper dose of medication and that she did not mean it in a way that my pain was any less then I had been describing. I now understood she was just doing her job which I respected and felt sorry for her that I was being such a pain. I was now physically and emotionally exhausted so I tried to sleep.
I was in and out of sleep when suddenly I awoke with the horrible pain again, I sat up in my bed crying and clutching my stomach, it seemed like there was no one around now, mum had gone to the food court to get some dinner. I felt like I was in so much pain and the halls were empty when suddenly a doctor/ surgeon or someone pointed at me and said she may have a kidney stone as well so get her a test done. I waited and waited and nothing….
it was almost 7pm at night now when I was seen to by a gynecologist, he seemed above the level of the two girls I had seen earlier, he had a feel of my stomach and went through the same questions again. “How is your pain out of 10?” Does it feel worse if I push on it?” “Is it a sharp or dull pain?” “Where does it hurt the most?” I answered with all the same answers as before yes, it’s excruciating, the pain isn’t getting better. To which he then turned around to me and said ” Look I don’t think it is Gynecological related, all I can do is either discharge you from here because I do not see the need for further investigation or put you into short stay and let the morning doctors discharge you.” This made me furious I had already been fighting for a few days, I yelled at him and said the surgeon before wanted to check my kidneys and no one did that, I am in agony, the pain meds haven’t been working, I haven’t eaten in three days, and my GP wrote me an emergency referral to come into hospital because when I was at Robina they wanted me to get a laparoscopy done. To which this surgeon basically tuned around and told mum and I that because of the money, and the stupid public system they would not do the diagnostic surgery unless I was physically dying and because all my test results were clear they couldn’t do anything. I argued and said if bowel gas is in the way how do you know something isn’t wrong if you do not look?
He replied “I’m sorry, that’s just the way it is, I can help with the bowels but I can not promise that you will not be discharged tonight.”
I was sobbing now and hyperventilating, I couldn’t breath, I was so upset, I thought I’m not getting sent home just to come back again tomorrow to go through the same thing. Mum was furious she got on the phone to her private gynecologist told him the situation and he asked to speak to the public doctor and basically told them that they were idiots for not checking everything. The public doctor just said the same thing he said to us that there is only a certain amount of money allotted to the public system to perform operations. Now all he was saying was that he would transfer me back to short stay and under the care of the ED doctors again. I was overwhelmed by the generous amount of support from Facebook and people offering to pay for my private health if the public system refused to give me tests.
It was now 11 pm at night, I had been given some more movical and another enema and once that kicked in things started to flow like a fire hydrant, It would suck because I would be in bed, then I would feel this horrible flushed feeling on top of the pain and would have to rush around the corner to the toilet, this happened five or six times within the space of 10 minutes to the point where mum just said stay down there, I also now had another hydro lite/ saline drip to keep me from being dehydrated because I hadn’t eaten all day.
When I finally got back to my bed, I found that there was a wardy there waiting to transfer me to short stay in ED, I remember asking him if my bed was next to a toilet, luckily it was. Once I was transferred I was allowed to eat something, not that I really felt like eating because I had been so sick, I now had a TV in short stay and had finally been given my night time meds, I started to get settled in and it was really late so I sent mum home. There must have been a conversation between mums private gynecologist and someone up high at the public Gold Coast Hospital because within an hour of my getting transported to short stay the head consultant of the gynecology team was at my bed and had decided to speak with me. He did the same tests as everyone and then said they would be transferring me to CDu2 which is the surgical ward just to manage my pain on a more regular basis. It was 2am by the time I was transferred to the ward, so I fell asleep pretty much straight away.
In my next post i will continue this story and my journey and fight to not give up on my body and to always believe in myself.